I had another blog post completely ready but this one seemed more pertinent today.
I spent the day laid up in bed. I was mobile, I could get up the stairs with minimal pain, and there was no stiffness when I woke up. Why was my day totally ruined? M-E-D-I-C-I-N-E-S.
They are so wonderful in controlling my symptoms. Well, one if particular: methotrexate. I look forward to my once-a-week injection because I know I will feel 10 times better the next day. Unfortunately, this medicine also has awful side-effects. I guess it comes with being a low-dose chemotherapy.
I could barely move today, not because I was in pain and “rusty”, but because I was weak and nauseous. I guess chemo will do that to you. I recently increased the dose because of my latest flare-up but with that came a couple of days of pure agonizing nausea to the point that I just couldn’t move. One of the other lovely things about methotrexate is that it does a number on the red-blood cells and leaves me feeling insanely weak.
Needless to say, I spent the entire day sleeping because I was so lethargic. What did I miss out on? Rock-climbing, a doctor’s appointment, and some lovely retail therapy.
Given my condition, I know why this medication is so important to controlling the symptoms. It kills the white blood cells, stopping them from over-imaginative activity and it helps prevent any longer term damage to the cartilage. That sounds great! Sign me up!…Oh wait, at what expense if I can not function? I spoke with my doctor, we are lowering the dose back down to the original. Still effective, less side-effects. Hopefully this is the last week of this mess.
Hi, my name is Monica and I have RA.
Love your title!! My mom had to be on methotrexate and eventually she just couldn’t take it anymore and had to go off it completely. You are so strong to be able to handle even a lower dose. I know you posted this a while ago, but I’m hoping once I get to August, I’ll read that you don’t have to deal with that anymore. Hope things improve …
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Thank you! I am used to the injection now so thankfully, I experience no side-effects. I do have to be careful that I do not go over the 0.80cc when filling the syringe though.
Methotrexate was one of the first medications I started taking when I was diagnosed. I remember when I started the pills I was nauseous for days and I had to take it five or ten minutes before I was ready to fall asleep otherwise the nausea was too much to bear. I would also be super tired the day after.
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