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My doctor tells me that I have a very interesting case of RA. Even during a flare, I do not show outward inflammation. We have talked about taking a MRI to measure the amount of inflammation but neither of us feel strongly about it.
I was never a hypochondriac. Part of me thought that because I was small, people would assume I could not take the same amount of pain or stress as someone larger than me. Because of that whenever I hurt myself I would not make a big deal of it. I would not take pain medication. I would power through. So when I started feeling RA symptoms I knew something else was going on. I sustained a wrist injury for many months before I was diagnosed, but my orthopedist knew that the emerging symptoms were not based on the injury alone.
Now, two years after the initial diagnosis, I can feel the slightest difference in my joints. Everything from my ankle does not roll as easily or I bend at the hips more frequently than at the knees.
This makes me uneasy. I know the difference between being out of shape or tired and a flare. Lately, though, everything feels like it causes a flare: climbing, going for a walk, cooking the dog food. I wonder if I am planting a seed of insecurity in my mind that tells me that I no matter what I do, I will flare. I hope not.
Whenever I flare up, I think:
Why do I think I am experiencing a flare?
Is it just based on pain?
Is it based on mobility?
I am basing this current flare on lethargy. I can tell this is a flare because I am uncharacteristically tired. All. The. Time. I nap twice a day and still sleep at night. I can not wake up in the morning which usually comes easily to me. It takes more energy to stir the dog food and carry the dog bowls. I feel strain climbing the stairs or bending down to pick up the pets. My fingers and elbows cramp up more quickly and my shoulders are more painful than usual. A morning does not go by that I am not dropping something. Two days ago, I nearly shattered the dog bowl and a handful of drinking glasses.
More often than not I feel like a hypochondriac but I have to remember that I can gauge a flare in concrete terms that hopefully put those insecure thoughts at bay.
Hi, my name is Monica and I have RA.
And in the middle of all this disfunction, you look normal. Frustrating. I’ve learned to manage my chores and routine to eliminate problems the next day or two. Sometimes something is worth doing despite what it will cost me to lose. My family has learned I’m managing my “spoons”. Do you know that story? http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/
I had the hardest time reconciling my need to do vs my need to maintain disease stability. It is a balancing act for sure. Hang in there!
Marcia
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Thank you! That was a very interesting article. I have never thought about it in those terms before but it made perfect sense!
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