Tag Archives: infusion

Yellow & Grey Smoosh Nail Technique Nails

31 Tuesday May 2016

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I didn’t have my smoosh nails ready for #SmooshyNailSunday because I had a rough weekend. I sat for my Orencia IV infusion on Friday and without thinking went to a movie on Saturday (if you are not familiar with Orencia it is an immuno-suppresant medication). A crowded theater was probably not the best place for me. My friends and I met at the climbing gym, walked to the theater and back. By the end of the night I nearly fell asleep standing up.

I added insult to injury by re-adjusting my sleep schedule. Disney Channel celebrated their 100th original movie by airing all 100 movies, starting this weekend. They were on around the clock and of course, the best ones were between 12 and 4 am. If you are a 90s kid you will appreciate my situation.

The weather was beautiful but I spent it swollen, lethargic and all around low. Of course, this means it’s no better time for an arthritis friendly nails. The smoosh nail art technique is simple, easy and quick and a go to for me when my Rheumatoid Arthritis is flared up.

I hope you like my yellow and grey look. I added clock water decals because this weekend marked my longest reaction to Orencia, to date.

 

smooshyellowBase: SinfulColors Whiteboard

Smoosh: ziploc baggie, stamper, Zoya Pippa, OPI No More Mr. Night Sky, Pipe Dream Polish Sonic Transducer

Decals: Pueen Cosmetics

 

Hi, my name is Monica and I have RA.

Orencia – Month Seven | Rheumatoid Arthritis & Nail Art

01 Monday Feb 2016

Posted by in Nail Art, Rheumatoid Arthritis

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I have been on Orencia Abatacept for seven months. This is around the time we see the effects plateau. I took Orencia three times previously, both in subcutaneous and interveneous forms and each time I saw a dip in its effectiveness.

Orencia always works better than the other biologic medications. I feel less fatigued, painful and swollen. I also do not have any reactions to it which is a huge bonus.

And, even though this medication works best, the effects only last a couple of weeks. When I feel well, I wake up early and only need a short nap during the day but as the Orencia wears off I sleep later in the mornings and pass out for hours at a time during the afternoons. Sleeping is the best. I love napping but if I look back on the past five years I realize I spent more than half of it not awake! That’s a lot of time wasted…

When I go in for my infusion I am down for the count for a couple of days. I am not necessarily lethargic or painful, just a little out of it. Once the following week rolls around I snap back to attention, I have a bounce in my step and I feel “better”.

As the Orencia builds up in my system I do not think I will feel “better” immediately after each infusion but I shouldn’t feel worse. I still crave sleep and feel a noticeable dip in energy toward 3 or 4 pm. I am not sure if this is normal for seven months into this medication.

I sometimes feel like climbing after work but more often than not I just feel tired. The farther I have to drive (for work) the less likely I can do anything afterwards. I am usually too exhausted to even do my nails!

 

Regardless of my grievances, I prefer Orencia more than the other biologics but I wish it worked even better. But, I guess, beggars can’t be choosers!

Below, is the nail art I made for this month’s Orencia post. I hope you like it!

1-orenciadotsBase: Milani Power Periwinkle (old formula)

Dots: Zoya Crystal (un-matte), China Glaze UV Meant to Be, Pop Beauty Pacific Hoot, Glitter Gal Australia Bluemerang, Milani Blue Print (new formula)

Matte Top Coat: Essie Matte About You

 

Hi, my name is Monica and I have RA.

Actemra Infusion | May 2015

17 Wednesday Jun 2015

Posted by in Rheumatoid Arthritis

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I never updated on my second infusion, did I? My main goal, with these posts, is to archive my progress while on Actemra. This is for my own personal benefit and for those who are considering this medication. Except for the brand’s website there is very little information available. I sometimes feel like I am running blind.

 

But, first…

A quick review of the first infusion. I handled it well. I experienced no pain, dizziness or fainting during the treatment. I felt slightly nauseous but assumed I needed to adjust to the new medication.

Unfortunately, it was more than a little first reaction. The nausea got worse. I could not keep anything down, including water, for three days! The intensity subsided but I was still nauseous for a week. Stomach upset and ulcers are side effects of Actemra but are also side effects of other TNF inhibitors and thiis was the first time I reacted so poorly to a biologic.

I had a history of medication-induced ulcers and chronic inflammation of my stomach lining and duodenum. At the time, my doctors prescribed Reglan. As long as I maintained my insanely strict diet, Reglan maintained my nausea. After my ulcers healed and I received the all clear to return to my normal diet I kept a couple of these pills on me at all times. I rarely needed them but they were effective.

 

Fast forward to Actemra: Reglan did absolutely nothing. It actually made the cramping worse. My rheumatologist contacted my gastroenterologist and she suggested Zofran.

Story time: Saachi was prescribed Zofran 8mg tablets, as needed for nausea, during her chemotherapy. After she passed away, I donated the remaining pills back to the hospital. This was literally one month before I, myself, was prescribed the exact same medication! While my rheumatologist frowned upon taking “animal pills” I personally had no problem with this. Working at a vet clinic I knew these were good human-grade generic medications. It doesn’t really matter now but I just thought it was funny!

 

Zofran was a stronger anti-nausea I took 2-3 hours before the infusion. It made me groggy so my father drove me (best dad ever) to the appointment.

When Saachi took this medication she drooled and drooled and drooled and lapped up water like it was her only job in life. I now know why: Zofran tastes disgusting. It is a quick-dissolve tablet I place under my tongue. BLEARGH!

 

Now onto the second dose…

 

I tolerated the IV well. I was not nauseous during the infusion or even afterwards! I alternated between the Zofran and Reglan for intermittent stomach upset but the nausea was nothing compared to the previous month.

Where am I now?

I am three weeks post-infusion and I am beyond fatigued. I am past exhausted. I became noticeably more tired last week. I slept more deeply during my naps. Usually, I lay down, close my eyes and rest. I am more or less conscious. Lately, I’ve been out like a lightbulb. I also cannot wake up in the mornings. I am not a morning person, but, when I have to, I wake up early and respond well to my alarm(s). Now, I snooze for at least 15 minutes and over the last few days I overslept by an hour and a half (Thanks, pets, for not waking me up)!

I am only two months into this new medication but this is not cool. Just the idea of being awake makes me more tired. Is this how I am going to feel for four more months until I know the full effect of this medication? This is a really unfortunate way to start the summer!

 

Hi, my name is Monica and I have RA.

Dry Brush and Stamped Nail Art for First Actemra Infusion

25 Saturday Apr 2015

Posted by in Nail Art, Rheumatoid Arthritis

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During my February monthly rheumatology appointment, my doctor tried to convince me to change medications. The Orencia hit its usual plateau and the inflammation slowly crept back in. I don’t really remember that doctor’s appointment. I don’t even know if I understood a word he said. I was so exhausted, foggy and painful nothing made sense. Life didn’t make sense. Well, if my biologic medication was no longer working it was a no-brainer to switch, right? Unfortunately, Saachi was still recovering from her emergency splenectomy (spleen and tumor removal) and would start chemo in the following weeks. With the cancer running rampant within her bloodstream I could not take the chance of getting any worse and not being able to care for my dog.

As the Orencia faded and the Actemra built up in my system there would be a period where I would feel worse of; mostly because my other medications were not doing enough on their own. I had to take care of Saachi. Reluctantly, my doctor agreed it was my call and we could wait.

I had a follow-up a couple of weeks after Saachi passed away and my doctor was still not pleased. I had more inflammation in my joints than in recent months. Something had to change. I had a little more wiggle room to try out new medication as my father was back in town so he could help me. I reluctantly decided to switch to IV form of Actemra.

Actemra is like any other TNF inhibitor. It suppresses the immune system at a specific spot. I was afraid my sinus infections would return. They were so debilitating. I could not care for my pets because my allergy to their dander set off these headaches. Since each biologic medications hits different points of the immune system there was an unlikely chance my sinus infections would return.

 

I tolerated the infusion well. It took about an hour since the technician wanted to make sure I did not have a reaction.

Even though I did not have any reactions during the IV I became very nauseous afterwards. The persistent nausea lasted about 24 hours but I still it intermittently. I did not notice a difference in my RA symptoms. I still felt painful and swollen.

 

Anyways, on to the nail art. I created a dry brush manicure topped with stamping. The infusion liquid is clear which is no fun for nail art so I landed on blue! I then stamped some molecules and bubbles.

 

Dry Brush and Stamped Nail Art | The Rite of AgingI started with Essie Mademoiselle as my base.

I dry brushed with a mix of Orly Sec n Dry, China Glaze UV Meant to Be, Milani Power Periwinkle and Sally Hansen Blue My Mind.

I stamped with Milani Black Swift, MoYou London plate 3 from the Scholar Collection, Essie No Place Like Chrome and Pueen Cosmetics plate PUEEN36.

 

Hi, my name is Monica and I have RA.